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Home Care Guide


Solving Problems Using the Home Care Guide

There are four key ideas that will help you to be effective in solving your caregiving problems and to make the best use of the home care guide book.

You can remember these four key ideas by thinking of the word COPE:

C for Creativity
O for Optimism
P for Planning
E for Expert information

 

 

 

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Get EXPERT INFORMATION about the Problem and What You Can Do about It

The foundation for good problem solving is knowledge about the problem and about what can be done to deal with the problem. The home care plans give you five kinds of expert information needed to solve caregiving problems.  Read the home care plans before starting to deal with a problem-then you will have a complete understanding of the problem and what you can do to deal with it. You should also re-read the plan periodically, especially if your plan does not seem to be working, to be sure that you are doing everything you can.

Develop an Orderly and Systematic Plan

Problem solving is done best in an orderly, systematic way. This means you should:

Get the facts
Be clear about what is happening. Separate facts from opinions.
Review what you can do
Read the home care plan and other written information about the problem. Ask health professionals for recommendations. Think back over your own experiences for ideas and strategies that worked in the past. Ask what you can reasonably hope to achieve.
Decide on the Best Strategy
Compare the advantages and disadvantages of the different approaches you could take, and develop a strategy that has a reasonable chance of achieving your goal.
Consider Obstacles
Think of what could interfere with your plan, and think creatively about what you can do to deal with those obstacles.
Carry Out and Adjust your Plan
Set deadlines for yourself to be sure things get done. Keep records of how the plan is working, and keep calendars of important treatment dates. This will help you to monitor progress and to explain to medical staff what you have done and what the results were. If the plan is not working or you are not having as much success as you hoped, ask yourself if you are expecting change too fast and whether you should adjust your goals. Then repeat the problem-solving steps to develop a new plan, paying special attention to maintaining a positive attitude and expecting success.

Have an OPTIMISTIC Attitude while Being Realistic about Your Problems

Carry Out and Adjust your Plan
Set deadlines for yourself to be sure things get done. Keep records of how the plan is working, and keep calendars of important treatment dates. This will help you to monitor progress and to explain to medical staff what you have done and what the results were. If the plan is not working or you are not having as much success as you hoped, ask yourself if you are expecting change too fast and whether you should adjust your goals. Then repeat the problem-solving steps to develop a new plan, paying special attention to maintaining a positive attitude and expecting success.
Have a positive attitude
One of the most important things you can do to help the young person you are caring for is to have a positive attitude. People who are dealing with the stress of cancer and cancer treatments need encouragement, and they need help noticing the good things that are happening. At the same time, it is important to be realistic about the seriousness of their problems so that they do not feel that their problems are being ignored or belittled.
Expect to Succeed
If you think that there is a good chance of succeeding, you will do your best. If you think the problem is hopeless and that nothing will work, it will be hard for you to do your best at carrying out your plans, and the people who are around you will become discouraged, too. If you do feel discouraged and negative, then get help from someone who has a positive attitude and who is a good problem solver. This could be friends or family members, health professionals, and, if he or she is old enough, the young person with cancer. Read the home care plan for Parents' Depression for help in controlling negative thinking that interferes with effective problem solving.
Take Breaks from Caregiving
Do things that you enjoy to take care of yourself so that you will be able to have a positive outlook, even when you feel under stress. Read the home care plan for Successful Caregiving for ideas and guidance about how to deal with your feelings as a caregiver. Also, read the home care plans for Parents' Anxiety, and Parents' Depression. They will help you to have the emotional strength you need to have a positive attitude and to solve the problems that come with caregiving.

Be CREATIVE

As a caregiver you will be constantly challenged to think creatively.  Each person is unique and each problem is unique. Therefore, you must be creative in adapting your plans to fit each unique situation. Most plans will run into obstacles or road blocks. Overcoming or side-stepping these obstacles will also challenge your creativity. When your plans don't work out as you had hoped, you should see this as a challenge to your creativity. Here are three things you can do to help yourself think creatively when dealing with obstacles.

See the obstacle from someone else's point of view. Put yourself in the shoes of another person who can look at your problem differently and ask yourself what he or she would do.

Ask other people who have faced similar problems for ideas about how to get around your obstacle.

Ask how important or serious the obstacle really is. Does this obstacle really stop you from carrying out your plan? Sometimes you can ignore or work around an obstacle and still carry out your plan.

How To Develop Your Own Home Care Plans

The home care plans in this manual deal with only the most common problems that young people with cancer and their home caregivers have. You can also use the same home care plans as models for the information you need to solve other caregiving problems.

Understanding the Problem

The first step in developing your own home care plan is to understand exactly what the problem is you are trying to solve. You should also have a clear idea of your goal.

You need to find out what kinds of children have this problem, when they have it, what kinds of things can be done to help, and what is a reasonable goal to work toward. For medical problems, ask the doctor or nurse. For nonmedical problems, social workers, child life staff, and nurses are often very knowledgeable. Other caregivers and members of support groups can also help.

You also need to know the facts for your situation. Exactly what happened, when did it happen, how often did it happen, how severe is it, what was done in the past, and what were the results? Be sure that these are facts and not just opinions or impressions. Facts are the foundation for successful problem solving.

When to get professional help

For medical problems or problems that could endanger the health of the young person with cancer, ask the doctor, nurse, or social worker when and whom you should call.

What you can do to help

For medical problems, ask the doctor, nurse, or social worker what you can do on your own to deal with the problem-or to prevent it from happening.

For non-medical problems, you can develop your own strategies by using your experience and your creativity and by asking other people for ideas. Think back to what you did in the past that was helpful for similar problems. If something was just partly successful, think how you could use it with this problem. Be creative. Try to think of new ways to look at the problem and unusual ways to solve it. Try "brainstorming," where you free your imagination and try to think of unusual ideas. When you brainstorm, make the longest list of ideas you can, and don't criticize your ideas until after the list is finished. Then choose the best ideas from the list. The freer your imagination and the longer the list, the better are your chances of coming up with a creative solution. Finally, you should weigh the advantages and disadvantages of each idea and choose what to do based on your past experiences and what you think will have the best chance of succeeding.

Possible obstacles

Consider what could prevent you from carrying out your plan and how you are going to deal with these obstacles.

For medical problems, ask the doctor, nurse, or social worker about difficulties that other people have had in dealing with the problem and how to overcome them.

For non-medical problems, think of what obstacles could prevent you from carrying out your plan and how you will deal with them.

Carrying out and adjusting your plan

You need to know how to check on your progress. What changes should you be looking for and how fast should you realistically expect to see change? Ask health professionals or people who have dealt with similar problems for suggestions and advice.

How To Make the Best Use of Home Care Plans

First read the outline headings to know what information the plan contains. Then read the whole plan to fully understand what you can do and why.

The home care plans are organized as outlines. You can quickly read the topic headings in bold type and have a good overview of what the plans are saying. Topics with an arrow in front of them are actions you can take or symptoms you can look for. So, if you want to quickly review what you can do, just read the topics with arrows to the left.

We also recommend that you read all the information in a home care plan before you start dealing with a problem. Then you will have a complete understanding of the problem and what you can do to solve it.

Notice and deal with problems early

One of the most important ways that you can help the young person with cancer is to notice and deal with problems early. Problems are easier to solve when they are just starting, and early intervention can often prevent problems from becoming serious. If you read the home care plans before problems develop, you will be prepared if they occur, and, since some plans include how to prevent problems, you can even prevent some problems from happening

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For questions or comments regarding the Pediatric Hematology/Oncology web site, please email Linda Leonard  @ lleonard@psu.edu



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This page was last updated on March 30, 2006
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